Canadian Pemphigus and Pemphigoid Foundation

Canadian Pemphigus and Pemphigoid Foundation

About the Disease

Pemphigus comprises a group of rare, auto-immune diseases of the skin and/or mucous membranes. Auto-antibodies are produced and attack desmoglein — the “glue” of the epidermis that keeps the skin intact. When this happens, the skin cells become separated from each other. This causes burn-like lesions or blisters that do not heal. It can be fatal if left untreated and the blisters spread and become infected. Early diagnosis is important and aggressive treatment strategies are often needed.

Pemphigoid comprises a group of rare, autoimmune blistering diseases. There are two major forms — Bullous Pemphigoid and Cicatrical Pemphigoid. The type of Pemphigoid contracted depends on which auto-antibodies are produced and in which layer of the skin the blisters occur. Pemphigoid is usually seen in the elderly. As with pemphigus, if left untreated it can be fatal.

Mission

This mission of the Canadian Pemphigus and Pemphigoid Foundation is to improve the quality of life of Canadians who suffer from or are impacted by pemphigus or pemphigoid diseases.

Vision

Our vision is to support all Canadians and their families and friends through diagnosis, treatment and remission stages of these diseases.

Who We Are and What We Do

The Canadian Pemphigus and Pemphigoid Foundation is a national not-for-profit charity that was founded in August of 2008 to support Canadians through the diagnosis and treatment of these rare diseases. The Foundation is guided by a dedicated group of volunteer members. Since the inception of the Foundation, we have been able to:

For more information about our organization, visit www.pemphigus.ca.

Why We Need Your Help

Through the creation of the Foundation, a gap that existed in the health sector in Canada is being filled. Although there is no exact figure to the number of individuals living with these rare diseases, these disorders require attention and individuals facing these diseases require information and support through the stages of these diseases. The Foundation now wishes to expand the scope of its services and support. In 2013, we are committed to

Call to Action

The Canadian Pemphigus and Pemphigoid Foundation is seeking volunteers who will join our team and help us raise money to provide support and information to patients and their care-givers. Through our participation in the Scotiabank Group Charity Challenge at the Scotiabank Toronto Waterfront Marathon on October 20, 2013, we seek to raise funds that will allow us to continue our work and take it to a new level. To register for the event go to www.torontowaterfrontmarathon.com. Click on Register and it will bring you to the Registration page. You can register online, by mail or in person.

Steps for registration:

  1. Click on www.eventsonline.ca/events/crs_scotia
  2. Select your event
  3. Complete the remainder of the form
  4. Select Canadian Pemphigus and Pemphigoid Foundation when you see the Charity drop down menu.

When you complete your registration you will receive an EVENTSONLINE RACE CONFIRMATION email. You will then be directed to transfer your data for online fundraising through Artez Interactive.

Incentives

Anyone who raises over $250.00 will receive a reimbursement of their entry fee. You will also be invited to an after race get together so that we can thank you for your participation and congratulate you on your accomplishment.

Contact

For more information, contact Harpreet Karir — Our Marathon Leader — at 647-382-9356 or via email at info@pemphigus.ca.

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