Fragile X Research Foundation of Canada

Fragile X Research Foundation of Canada


The term Fragile X refers to a group of conditions due to defects in a gene on the X chromosome:

Fragile X syndrome (FXS), first known as Martin-Bell syndrome, is the most common inherited form of mental impairment. FXS affects 1 in 4,000 boys and 1 in 6,000 girls of all races and ethnic groups. While Fragile X individuals have a normal life expectancy, most will need support and care for their entire lives.

A single gene in the brain cells shuts down, causing Fragile X syndrome. In 1991, scientists discovered the defect in a gene on the X chromosome (called FMR1) that causes FXS. In affected individuals, this gene is shut down and cannot manufacture the protein it normally makes — a protein vital for normal brain development and functioning.

The FXRFC is dedicated to raising awareness of and funding research for Fragile X Syndrome — the most common form of intellectual impairment in the world and the leading known genetic cause of Autism.

We're a 100% volunteer organization run by parents and professionals who have a family member with Fragile X Syndrome. We actively fund research and clinical trials within Canada. Almost every dollar raised goes directly to research!

Why you should run or walk for FRAGILE X

So much has been learned about Fragile X Syndrome over the last ten years and we're very excited about the potential for a future cure or treatment. We need your help to fund upcoming clinical trials and further research. Past successes in the Scotiabank Vancouver Half Marathon & 5km have inspired us to form a Fragile X Team in Toronto for the third time.

Join us on October 20, 2013 in Toronto as we run & walk for the Fragile X Research Foundation of Canada!

The first 10 team members will receive free entry into their choice of event (5km, Half or Full Marathon). Every team member who raises over $100 will receive a Fragile X Team running hat and shirt.

To join our Fragile X Team contact: Ian Shearer Ph. 416-419-7108


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