Meet Jaida - she is a beautiful five-year-old child. In so many ways Jaida is a typical little girl. She is a true chatterbox!! She loves to colour and do crafts. She loves Treehouse TV and especially Dora and Diego. One of her favourite activities is swimming. She is a master of puzzles and has a huge collection of them. She is learning to read and loves to go to school. Unfortunately Jaida's physical condition is anything but typical… her tiny body is letting her down.
Jaida has been a Sick Kids patient since she was 18 months old. She has an undiagnosed neuromuscular disorder characterized by extreme muscle weakness, ataxia (shaking) and difficulty swallowing. Jaida gets virtually all of her nutrition through a feeding tube that goes directly into her tummy. Her nights are difficult and she spends them hooked up to a machine that monitors both her pulse and her oxygen saturation because she has central and obstructive sleep apnea. Jaida has severe osteoporosis which has caused compression fractures in her spine. As a result of these conditions Jaida cannot walk or crawl.
Despite the physical challenges that Jaida faces she is truly an inspiration to all who meet her. She is a fiery little redhead with an abundance of intelligence and humour. She is a hero to us all.
Jaida's physical disabilities and medical fragility result in ongoing and changing needs in relation to both personal support and equipment. She requires many types of specialized equipment for her day to day life at home including specialized seating, lifts, ramps and modified fixtures. Jaida's recent graduation to a power wheelchair brings its own set of challenges for accessibility both at home and out and about in the community. Jaida is a great communicator but her efforts are lost on those who do not have constant contact with her and therefore cannot understand her speech. Advanced technology will provide Jaida with the tools that she needs to "give her a voice" so that she can express herself and communicate confidently with her family, friends and community allowing her to share, learn and grow.
Jaida's day to day struggles are incredible. With your help we can enrich her life and in turn Jaida will continue to enrich the lives of everyone she meets.
On September 27, 2009 we are rallying together with friends, family and the community with the support of CLASS Preschool Program — Community Living Association for South Simcoe, to take part in the Scotiabank Toronto Waterfront Marathon.
"The mission of the Community Living Association for South Simcoe is to advocate that persons with developmental disabilities live in a state of dignity, have equal opportunity to maximize individual potential for personal growth and participate in all elements of living in the community."
We would like to thank CLASS for being part of Jaida's development & for supporting JAIDA'S CHALLENGE.
Please walk or run with us: for step-by-step instructions on how to register go to www.jaidaschallenge.ca and click on Run/Walk.
To donate to Jaida's Challenge click on Sponsor a Participant or Sponsor a Team at the bottom of the page. PLEASE NOTE that you will have to know the name of the participant or the name of the team to do so. If you do not know either then you can sponsor team - Jaida's Challenge.
Contact Kim Cumberland at 705-730-4600 or email firstname.lastname@example.org if you have any questions.